All John Dilgen wants out of life is to help his 11-year-old son, John Jr., escape the terrible pain that plagues him every day. John Jr. battles a rare genetic tissue disorder known as Epidermolysis Bullosa, which makes his skin prone to severe blisters and tears. John Sr. estimates that only about 30% of his son's body is covered in skin.
His son's condition makes it impossible to attend school, walk, even swallow, yet somehow John Jr. manages to joke around and smile. When the pain becomes too horrible and depressing for his son to handle, John Sr. turns to music, something that his father instilled in him. They sing together to help John Jr. escape the pain, if only for a moment. The power of music never ceases to amaze me. If you think this boy is incredibly brave and want to show him some love, please SHARE their unbelievable story.
